Hughes brings advice, encouragement from sister city of Joplin

In February of 2018, Sandy Hughes of Joplin, Missouri lost her husband to cancer, sending her on a path to create a space there for a “peaceful transition from life to death.” She co-founded Solace House, a non-profit social-model home for end-of-life care. After five years of struggles and successes, Sandy is now providing encouragement and insight for the Columbia team behind Caring Hearts and Hands while still working tirelessly in Joplin to care for guests and their family members. 

Photo of Sandy Hughes, co-founder of Solace House of the Ozarks.

“I was dealing with grief from the loss of my husband, and that gave me much purpose to help start an end-of-life care home,” Sandy said. “And because of that, that starting gate, it became cathartic to me. It helped ease my grief by making sure that other people had a place to go to, because I did not. Solace House is a community of hearts. And those volunteers that come are so dedicated. They just love it. They just love what they do. Caring Hearts and Hands, it’s going to be very successful, I assure you.” 

Both Solace House of the Ozarks and Caring Hearts and Hands of Columbia are part of the Omega Home Network, which provides assistance to developing and operating social-model homes across the country.

Sandy visited Columbia on March 14 for a question and answer session to help share the knowledge she and her team have earned over the past several years. 

“There’s no reason for reinventing the wheel, especially if we’re going to be helping a sister city,” Sandy said. “Columbia is special. And those individuals that were there that night that I got to meet are very sincere and very passionate about what they’re trying to do. And we cheer them on; we want them to be successful.” 

“Columbia is special. And those individuals that were there that night that I got to meet are very sincere and very passionate about what they’re trying to do. And we cheer them on; we want them to be successful.” 

Sandy Hughes

Solace House began as Sandy gathered others in Joplin with a similar heart, as well as her husband’s oncologist, doctors, nurses, social workers and hospice providers. Within a year, the organization became an official non-profit, and by January of 2020 Sandy signed a lease for a house. They started turning this house into the perfect end-of-life home when COVID hit. 

Though the pandemic certainly set them back, it also highlighted an even more intense need for a place like Solace House. With state safety guidelines, families were not allowed into nursing homes or hospitals to visit their dying loved ones. Good-byes were said through windows and phone calls. Many died alone. 

So when Solace House finally opened in June of 2020, they were able to provide relief and comfort to many families. They allowed loved ones to visit and stay with their guests within the home – after COVID testing and with masks, of course. 

“It was just an answered prayer for a lot of people,” Sandy said. “The timing was just incredible. Now, with that behind us, it’s been full throttle.” 

The organization and others like it provide a free home for guests in their last month of life whose care needs cannot be met in their own homes, giving 24-hour support from volunteers for guests’ physical, emotional and spiritual needs. They do not replace medical care, but instead give a space for families to be around their departing loved ones in a caring and supportive environment. 

“Oftentimes, when a guest comes to the house, they are exhausted from being in the hospital,” Sandy said. “When they come through those front doors, it’s as if a weight has been lifted off their shoulders. I have seen it over and over again. Solace House, it is truly transformational. I just can’t explain it any more than that. It’s just they know why we’re there. And we know why they’re there. And it’s just a matter of showing up at the house.” 

With two beds in each bedroom, families are welcome to stay around the clock, doing laundry, showering, cooking and doing whatever else there, truly treating it as if they are in their own home. 

“It’s not just taking care of the guest,” Sandy expressed. “I have found in the past year that we are really actually caring equally, if not more, for the family members. They are heartsick that they’re going to lose their loved one. And I find that we are picking up the pieces. I said that at the meeting in Columbia, just to be there for a loved one with some hand holding some hugging. It’s just so important. And I cannot emphasize that enough. In many respects, we’ll spend almost the equivalent with the family if not more than with our guest. And the guest is our focus. They’re inseparable.” 

Now, Columbia can benefit from the lessons learned by Solace House and can find comfort in the established community of Omega Home Network. 

From her experience, Sandy expects that Caring Hearts and Hands will face their biggest challenge in finding volunteers

“Everything else is easy. It’s just finding the volunteers who have a heart for the mission. Once they come on board, and they have the experience, it’s easy. Our volunteers who have been trained have never left. They love what they do. But finding the volunteers, that’s the biggest challenge that they’re going to have.” 

Looking forward, Sandy has high hopes as more areas recognize the need for spaces like Solace House and Caring Hearts and Hands. She recognizes the passionate and sincere hearts within this starting group.

“Once they start, they’re never going to look back,” she said. “Because it’s just going to keep going and going and going. And there’s going to be more houses like this in Missouri and across the nation. I’m just so excited for Columbia. There’s going to be a few hiccups along the way, some things that they didn’t plan for. But once they get that core group of volunteers trained, then they’re off and running. That’s all it’s gonna take.”

Service above self is personal mission for Lee

Headshot: Patrick Lee.

For Patrick Lee, it’s important to focus on one phrase: Service above self.

Patrick’s healthcare experiences have spanned 40 years – and have given him a wealth of exposure to all facets of what it takes to lead a healthcare organization. Patrick now serves as the executive director for Services for Independent Living and leads an organization that endeavors empower people with disabilities, seniors, and veterans to maximize their independence and promote a barrier-free community

While his role as chair for the Caring Heart and Hands of Columbia board is a volunteer role, his experiences have been crucial as the organization moves from a “start-up nonprofit” (a term he often uses) toward an operating and functioning end-of-life care home serving mid-Missourians.

To get to know Patrick a little better, here’s a snippet from an interview with him about his experiences and his passion for Caring Heart and Hands.

You spent years in healthcare administration. How does CHHC fit into the mold when you consider your professional passions?  

Healthcare is a people-caring-for-people business and it takes tremendous heart and passion to be successful.  End-of-life care is just a more passionate form of this, and the social model, end-of-life, personal care home brings marvelous innovation to that passionate caring.

How did you get involved with the CHHC board? 

I am actively involved in the Rotary Club. My club sponsor from 20 years ago was approached by Jackie and Dorreen, CHHC co-founders, to serve on the Board. While he didn’t have time, he said “I know just the guy” and recommended me.

They reached out to me. I had dinner with them. And I was sold!

You now serve as Executive Director of Services for Independent Living. Do you see a connection between the work there and with CHHC?

There is a connection because everyone will reach an end-of-life stage, and most would prefer to pass in a home versus an institutional setting.  That applies equally to SIL consumers who are individuals with disabilities, the elderly, and veterans.

Both organizations are charitable in nature with major operations components, which I find most interesting.

What short-term vision do you have for CHHC as the Board president? Where do you want to see the org in 1-3 years?  

The short-term goal is to get our home open and operating effectively and efficiently early next year, providing high-quality care and service that is second to none!

The longer team goal is to expand our capacity beyond two guests. If the Missouri regulations do not evolve for us to serve more than two in one home, then we will develop a modular approach to operating multiple homes in a way that harnesses scale economies. The more central Missourians we can serve them better! 

So … work, work, work! What do you do for fun? How do you enjoy yourself? What brings you joy?  

Activities with my granddaughters and just being with my granddaughters!  When those girls aren’t melting my heart, I enjoy woodworking and just spending time with my family. I continue to spend time with Rotary and other service projects because I find tremendous satisfaction in “service above self.”

Nonprofit housing shuffle serves Columbia better

In early 2023, Caring Hearts and Hands of Columbia will open its doors ready to fulfill its mission to provide a comfortable home where the physical, emotional, and spiritual needs of our guests and families are met with compassion, love, and respect.

Caring Hearts and Hands of Columbia will occupy 1307 W. Broadway, in Columbia, Missouri.  

Jackie Reed (left) and Dorreen Rardin (right) pose for a portrait outside the future home of Caring Hearts and Hands of Columbia.

Nonprofits helping each other

In a chain reaction of moves, Caring Hearts and Hands of Columbia plans to take over the home that is currently being used by the St. Raymond’s Society after they move into the home now occupied by the Ronald McDonald House Charities of Mid-Missouri. RMH has plans to relocate closer to the University Hospital.

This is a story of three nonprofit organizations in Columbia that are all working together to serve the community.

“For every one of us, our end goal is to help the people we serve,” Mike Hentges, executive director of St. Raymond’s Society, said. “What you have here is three nonprofit organizations in one city that are collaborating to serve our community better.”

“The story of this house is incredible, really,” says Jackie Reed, co-founder for Caring Hearts and Hands of Columbia. “There’s a symmetry to this move. St. Raymond’s cares for pregnant women and new mothers. And we will care for community members and their families at the end of their lives. We are bookends. So, this house is a house filled with love. And that’s special.”

Future plans

Floor plan for main level of new house

While an exact date of operation isn’t set, the home will transition from SRS to CHHC in early 2023.

There are currently two rooms that can be used almost immediately once the Caring Hearts and Hands home opens.

Eventually, the basement level could be renovated to offer two additional guest rooms.

A dream realized

This is a crucial step toward fulfilling the CHHC mission.

“It has always been our goal to create a community-based home,” Dorreen Rardin, co-founder for CHHC, said. “A home is a special place. It is a place where people come together and create a community – whether it’s college roommates or more traditional nuclear families. We, very intentionally, want to provide a home and give comfort to those who are in their final days.”

Daugherty dives into the CHHC mission as volunteer

The work of Caring Hearts and Hands of Columbia isn’t possible without the help of volunteers. Cindy Daugherty is just one such volunteer. She current serves on the Board of Directors and works passionately to draw attention to the mission of Caring Hearts and Hands of Columbia.

How did you first hear about CHHC? 

“I met Jackie [Reed] at Boone Health when my mother broke her hip. She was a palliative care nurse at Boone. Jackie told me about her idea for Caring Hearts and Hands, and I was immediately interested.”

How long have you been involved with CHHC? 

“I have been helping with the mission for about nine months.”

What draws you to the organization’s mission? 

“When my father insisted on dying at home, it was incredibly hard. No one is prepared for the issues that come with caring for someone in final days. I wish that this home had been open then.”

When you talk to others about CHHC, what resonates with others?

“I think anyone who has been a caregiver for someone can relate to the mission of Caring Hearts and Hands. My own children now relate after watching what I went through caring for my father. All generations will benefit from the CHHC home. While discussing death is hard, and no one wants to think about it, knowing that this resource will soon be available is an incredible comfort.”

Where are you from? 

“I am born and raised in Columbia.”

Tell us about your family and/or those closest in your life. 

“I have a son Scott, and daughter, Erin. I’m blessed with four grandchildren who I love spending as much time with as possible. I also have a sister, two brothers and lots of nieces and nephews. We get together often and always have. I’m also blessed with fantastic friends. Family and friends are central to my life.”

What do you hope to accomplish as a volunteer?

“While on the board, I would like to accomplish one thing: to open Columbia’s first alternative care home for those in their final days.”

Oncologist, fiction-writer and friend

Donor Spotlight: Tungesvik

Dr. Mark Tungesvik, an oncologist with Missouri Cancer Associates, is no stranger to end-of-life care.

According to Tungesvik, oncology is one of the biggest referrers to palliative care where founders, Dorreen Rardin and Jackie Reed worked. He sees the need for Caring Hearts and Hands in our community.

“We will be treating people who are older and living alone. It’s not optimal, and as they get sicker, you’re in a pickle. For some, there’s not a lot of social support, and hospice can’t assist if the patient is alone. There are nursing homes, but that isn’t optimal. It could be a warm, loving place, but many patients don’t see it that way. I do think this is an unmet need.”

“There isn’t much small talk in the office,” Tungesvik says. “Once cancer patients have a diagnosis, their life changes. If it’s terminal, their perspective on life changes. And we form a real relationship. Working with the patients is the best part. That’s what I like, and that’s why I do it.”

But Tungesvik doesn’t stop at medical cancer treatments. He’s also nearing the end of a seven-year project, writing a trilogy of therapeutic fiction. This three-book series is meant to help those struggling more than just physically.

“Some people will have developed a dark worldview, and it’s hard to work out of that. So, I put together this series. It’s not just about providing for a person’s physical needs. They have to turn the corner emotionally and intellectually so they can have some hope. These books are about doing that.”

“I’ve been writing the Song of the Bear trilogy for nearly seven years, but I’m coming to the end of it. I’m going over what may be the final draft. I’ll be sending to a self-publisher soon.”

Song of the Bear Book Cover
A Ship called Eros Book Cover

Lighting the night with love

With donor support, we can light up the night at Stephens Lake Park on Nov. 6 as part of its inaugural fundraising event – Lights for Love: A Memorial Event.

This memorial event gives people an opportunity to purchase a luminary to honor their loved one and help raise funds to open a home in Columbia for those who are under hospice care, in the last month of life, and in need of caregiver support.

Lights for Love November 6

“We wanted to put together a fundraiser for the community that could be meaningful,” said Jackie Reed, treasurer, and co-founder for Caring Hearts and Hands of Columbia. “This is an opportunity to heal as a community after nearly two years of extremely difficult times for many of us.”

Community members can purchase a luminary to display at Stephens Lake Park on Nov. 6 at 5:30 p.m. Each luminary can be purchased for a minimum donation of $10.

The event will include music and will allow loved ones to spend time with others who have lost loved ones and remember their influence in our lives.

Lights for Love Memorial Event
Saturday, Nov. 6, 2021
Gordon Shelter – Stephens Lake Park

Check-in: 5:30 p.m., Gordon Shelterhouse
Luminaries on Display: 5:45 – 6:45 p.m.
Program & Music: 6 p.m.

Understanding the Omega Home Network

Omega Home Network logo

There’s so much to know about the social model home. It’s an innovative way to provide care at the end of life, and right now there isn’t such an option in the mid-Missouri area. However, there are others in Missouri and across the country. For a complete list of Omega Home Network members, click here. 

Q: What is the Omega Network? 

A: According to the Omega Home Network website, the Omega Home Network is a non-profit national membership organization that promotes the development and expansion of community homes for dying people.

Q: What does a social model home, like those in the Omega Home Network, provide? 

A: Social model homes are available across the country. They vary in size but provide end-of-life care in a compassionate and respectful community of caregivers. It models a home environment but provides skilled caregivers while linking guests with hospice care. 

Q: Why is Caring Hearts and Hands of Columbia part of this network? A: What CHHC is doing isn’t different from what is happening in other areas of the country. It’s simply new to us. The CHHC founders, both with extensive experience in palliative care, have seen this model work, and know it can help those in mid-Missouri.